They exist today because of the decades of work by foundations and organizations that have long been the backbone of Parkinson’s research, clinical guidance, education, and advocacy. These groups fund critical studies, shape care guidelines, support clinicians, and provide essential resources for people living with Parkinson’s and those who support them.
We recognize and respect it.
For your convenience, we’ve included contact info o several of these trusted organizations below.
The organizations listed remain essential anchors in the Parkinson’s community, and we encourage you to explore their work as part of your broader learning and care journey.
Trusted Parkinson’s Organization's
Parkinson’s research, care standards, and patient support didn’t appear overnight
Parkinson’s UK
Best for: United Kingdom support, advocacy, research funding
📍 Address: 215 Vauxhall Bridge Rd, London SW1V 1EJ, United Kingdom
📞 Helpline: +44 (0)800 800 0303
🌐 Website: parkinsons.org.uk
Parkinson’s Resource
Organization (PRO)
Best for: Education, support groups, “Wellness Village” resource directory
📞 Phone: (760) 773-5628 | (877) 775-4111
📍 Address: 74785 Highway 111, Suite 208, Indian Wells, CA 92210
🌐 Website: parkinsonsresource.org
The Michael J. Fox Foundation
for Parkinson’s Research (MJFF)
Best for: Research, clinical trials, cure-driven science
📞 Phone: 212-509-0995
📍 Address: Grand Central Station, P.O. Box 4777, New York, NY 10163-4777
🌐 Website: michaeljfox.org
Parkinson’s Foundation (PF)
Best for: Helpline, education, care navigation
📞 Phone: 800-473-4636
📍 Miami: 5757 Waterford District Dr., Suite 310, Miami, FL 33126
📍 New York: 1350 Broadway, Suite 1530, New York, NY 10018
🌐 Website: parkinson.org
American Parkinson's Disease Association
Parkinson’s Foundation (PF)
Best for: strong community and regional support programs
📞 Phone: 800-223-2732
📍 Address: 135 Parkinson Avenue
Staten Island, NY 10305, USA
🌐 Website: apdaparkinson.org
Davis Phinney Foundation (DPF)
Best for: Living well with Parkinson’s, exercise, practical guidance
📞 Phone: 866-358-0285
📍 Mailing Address: P.O. Box 270948
🌐 Website: davisphinneyfoundation.org
Davis Phinney Foundation (DPF)
(HealthPartners / Park Nicollet)
Best for: Specialized Parkinson’s clinic, integrative rehabilitation model
📞 Clinic Phone: 952-993-5495
📍 Address: 6701 Country Club Dr., Golden Valley, MN 55427
🌐 Website: healthpartners.com
Best for: World Parkinson Congress, global collaboration
📍 Location: Global organization
📧 Email: info@worldpdcoalition.org
🌐 Website: worldpdcoalition.org
Best for: World Parkinson Congress, global collaboration
📍 Location: Global organization
📧 Email: info@worldpdcoalition.org
🌐 Website: worldpdcoalition.org
Many neurological movement disorders have dedicated organizations that fund research, support patients, and help families navigate complex diagnoses. The organizations below are among the leading groups working to advance understanding, treatment, and care.
Organization's Supporting the Movement Disorder Community
Decades of research and advocacy built the support systems for many movement disorders. The organizations below help lead that work today.
Friedreich's Ataxia Research Alliance
Best for: Drug development research, clinical trials, family resources
📞 Phone: 484-879-6160
📍 Address: 533 West Uwchlan Ave
Downingtown, PA 19335
🌐 Website: curefa.org
Lewy Body Society
Best for: Lewy Body Dementia research and global awareness.
📞 Phone: +44 116 497 8287
📍 Address: The Old Hall, Markfield Road
Ratby, Leicester LE6 0LP
United Kingdom
🌐 Website: lewybody.org
Team Gleason Foundation (ALS Support)
Best for: Assistive technology and living-with-ALS support.
📞 Phone: 504-324-7170
📍 Address: 2000 Lakeshore Drive
New Orleans, LA 70122
🌐 Website: teamgleason.org
POLG Foundation
Best for: POLG research funding and disease awareness.
📞 Phone: 212-315-8339
📍 Address: 99 Park Avenue, Floor 24
New York, NY 10016
🌐 Website: polgfoundation.org
Hereditary Disease Foundation
Best for: Research funding, genetic disease research, Huntington’s disease scientific collaboration.
📞 Phone: 212-928-2121
📍 Address: 3960 Broadway, Ste 602
New York, NY 10032
🌐 Website: hdfoundation.org
MitoAction (Mitochondrial Disease Support)
Best for: Patient navigation, family support programs, practical resources
📞 Phone: 888-648-6228
📍 Mailing Address: P.O. Box 514
Natick, MA 01760
🌐 Website: mitoaction.org
United Mitochondrial Disease Foundation
Best for: Mitochondrial disease research, genetic testing programs, education
📞 Phone: 888-317-8633
📍 Address: 8085 Saltsburg Road, Ste 201
Pittsburgh, PA 15239
🌐 Website: umdf.org
Dystonia Medical Research Foundation
Best for: Education on Dystonia types, treatment resources, patient support
📞 Phone: 312-755-0198
📍 Address: 1 East Wacker Drive, Ste 1730
Chicago, IL 60601
🌐 Website: dystonia-foundation.org
Multiple System Atrophy Coalition
Best for: Patient support groups, caregiver guidance, education
📞 Phone: 866-737-5999
📍 Address: 9935-D Rea Road, Ste 212
Charlotte, NC 28277
🌐 Website: multiplesystematrophy.org
CurePSP (Progressive Supranuclear Palsy Support)
Best for: Research funding, physician education, clinical trial awareness
📞 Phone: 347-294-2873
📍 325 Hudson Street, 4th Floor
New York, NY 10013
🌐 Website: psp.org
Lewy Body Dementia Association
Best for: Caregiver resources, dementia education, support networks
📞 Phone: 404-935-6444
📍 Miami: 912 Killian Hill Road SW
Lilburn, GA 30047
🌐 Website: lbda.org
Huntington's Disease Society of America
Best for: Family support programs, Centers of Excellence clinics, community outreach
📞 Phone: 800-345-4372
📍Address: 505 Eighth Avenue, Ste 1402
New York, NY 10018
🌐 Website: hdsa.org
Best for: Tremor education, patient guides, community support
📞 Phone: 888-387-3667
📍 Address: P.O. Box 14005
Lenexa, KS 66285
🌐 Website: essentialtremor.org
Best for: Research funding, patient education, genetic Ataxia information
📞 Phone: 763-553-0020
📍 Location: 600 Highway 169 South, Ste 1720
Minneapolis, MN 55426
🌐 Website: ataxia.org
Best for: Patient care programs, equipment loan programs, advocacy
📞 Phone: 800-782-4747
📍 Address: 1300 Wilson Boulevard, Ste 600 Arlington, VA 22209
🌐 Website: als.org
Research Centers
This next section highlights medical facilities and care centers with specialized experience in Parkinson’s disease.
These centers often bring together neurology, movement-disorder specialists, therapy services, research, and support programs - providing coordinated care that can make a meaningful difference over time.
Access to knowledgeable care matters. Finding the right team matters even more.
Location: New York, NY
Focus:
- One of the largest dedicated Parkinson’s and movement disorders centers in the U.S.
- Major clinical trials hub (medications, deep brain stimulation, focused ultrasound)
- Strong integration of neurology, neurosurgery, psychiatry, rehabilitation, and research
📞 Appointments: 646-558-0800
📍 Address: 222 E 41st St, New York, NY 10017
🌐 Website: nyulangone.org/care-services/fresco-institute-parkinsons-movement-disorders
Location: New Haven, CT
Focus:
- Yale Movement Disorders Program with growing Parkinson’s research footprint
- Precision-medicine and biomarker research
- American Parkinson Disease Association Center for Advanced Research designation
📞 Appointments: 203-785-4085
📍 Address: 20 York St, New Haven, CT 06510
🌐 Website: yalemedicine.org
Location: New York, NY
Focus:
- Parkinson’s epidemiology and genetics leadership
- Long-running patient cohorts
- Strong clinical trials infrastructure
📞 Appointments: 646-426-3876
📧 Email: columbianeurology@columbia.edu
📍 Address: 710 W 168th St, New York, NY 10032
🌐 Website: columbiadoctors.org
Location: Stanford / Palo Alto, CA
Focus:
- Cutting-edge neuromodulation research
- Wearables, artificial intelligence, and digital biomarkers
- Early-phase clinical trials
📞 Appointments: 650-723-6469
📍 Address: 213 Quarry Rd, Palo Alto, CA 94304
🌐 Website: stanfordhealthcare.org
Location: Nashville, TN
Focus:
- Autonomic dysfunction and orthostatic hypotension research
- Cognitive and sleep-related Parkinson’s research
- Highly respected clinical care
📞 Appointments: 615-936-0060
📍 Address: 1211 Medical Center Dr, Nashville, TN 37232
🌐 Website: vumc.org
Location: Chicago, IL
Focus:
- Parkinson’s Disease & Movement Disorders Center
- • Strong rehabilitation, speech, and gait research
- • Integrated care team model
📞 Appointments: 312-695-7950
📍 Address: 251 E Huron St, Chicago, IL 60611
🌐 Website: nm.org
Location: San Francisco, CA
Focus:
- Top-tier DBS and surgical innovation
- Neurodegeneration and protein-misfolding research
- Strong patient-centered care models
📞 Appointments: 415-353-2311
📍 Address: 505 Parnassus Ave, San Francisco, CA 94143
🌐 Website: ucsfhealth.org
Location: Boston, MA
Focus:
- Harvard-affiliated research powerhouse
- Advanced imaging and biomarker discovery
- Strong ties to biotechnology and pharmaceutical trials
📞 Appointments: 617-726-5532
📍 Address: 55 Fruit St, Boston, MA 02114
🌐 Website: massgeneral.org
Location: Philadelphia, PA
Focus:
- Penn Parkinson’s Disease & Movement Disorders Center
- Leading DBS programming and neuropsychology integration
- Cognitive and neuropsychiatric Parkinson’s research
📞 Appointments: 800-789-7366 (800-789-PENN)
📍 Address: 3400 Civic Center Blvd, Philadelphia, PA 19104
🌐 Website: pennmedicine.org
Location: Cleveland, OH
Focus:
- World-class Movement Disorders Center
- Major deep brain stimulation (DBS) research and surgical volume
- Strong non-motor symptom research
📞 Appointments: 216-636-5860
📍 Address: 9500 Euclid Ave, Cleveland, OH 44195
🌐 Website: clevelandclinic.org
Locations: Rochester, MN · Scottsdale, AZ · Jacksonville, FL
Focus:
- Global authority in movement disorders
- Deep bench in genetics, imaging, and biomarkers
- Integrated neurology, neurosurgery, and rehabilitation
📞 Appointments (Rochester): 507-284-2111
📞 Scottsdale: 480-301-8000
📞 Jacksonville: 904-953-0856
📍 Primary address: 200 First St SW, Rochester, MN 55905
🌐 Website: mayoclinic.org
Johns Hopkins University
Location: Baltimore, MD
Focus:
Foundational Parkinson’s research history
Leadership in genetics, pathology, and disease progression
Strong translational research pipeline
📞 Appointments: 410-955-0303
📍 Address: 601 N Caroline St, Baltimore, MD 21287
🌐 Website: hopkinsmedicine.org
